Our baseline of
datapoints is defined by the US CDC and is comprised of 4 parts:
-
Patient demographic
information,
-
COVID-19 diagnosis and course of
illness
-
Co-morbidities
-
Information about the healthcare professional.
Our system uniquely
allows state CDC and healthcare professionals to include other biometric
data points normally included in the electronic patient chart(*).
Top goals of the registry include:
• Understanding the outcomes of patients
with CDC listed conditions who develop COVID-19
and the influence of their comorbidities and medications on their outcomes.
• Understanding the influence of
medications, such as hydroxychloroquine, on the outcomes of patients who
develop COVID-19.
• Rapidly performing systematic reviews of
the currently available literature regarding conditions and medications in
patients who develop COVID-19 and updating them frequently while the
pandemic is still active globally.
• Exploring the patient experience during
the COVID-19 pandemic.
Ultimately, we felt that building a worldwide registry
was the best way to contribute reliable, evidence-based information and
resources desperately needed in these rapidly evolving discussions."
The CUSHM Global COVID-19 Alliance is asking
that clinicians use the registry to report any and all cases of COVID-19 in
patients, including those with mild or no symptoms.
It is anticipated that the online case report form will
take five to 10 minutes to complete and no protected health information is
requested.
(*)
The dataset can include any information as designate by the HL7
International CCDA, including:
HL7 Consult Note 2. HL7 Diagnostic Imaging Report 3.
HL7 Discharge Summary 4. HL7 History and Physical 5. HL7 Operative Note 6.
HL7 Procedure Note 7. HL7 Unstructured Documents 8. HL7 Progress Notes 9.
HL7 Continuity of Care Document 10.HITSP/C84 Consult and History & Physical
Note Document 11.HITSP/C32 - Summary Documents Using HL7 CCD 12.HITSP/C48
Referral and Discharge Summary 13.HITSP/C62 Scanned document
.